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OsteogenesisImperfecta news

Osteogenesis Imperfecta (OI) Foundation launched in Cape Coast


Ghana News Agency - May 8, 2017
Cape Coast, May 8, GNA - The Osteogenesis Imperfecta (OI) Foundation Ghana has been launched in Cape Coast with a call on stakeholders to lead the research and render good medical treatment and care management to persons living with the disease.
 

Mother of boy born with just 2% of his brain launches campaign to stop late abortions of children with disabilities


Daily Mail - Apr 24, 2017
Lord Shinkwin suffers from osteogenesis imperfecta, a rare genetic brittle bone disease. The peer proposed a bill in parliament that would have seen all abortions banned after 24 weeks but it was defeated last month. Lord Winston, the fertility ...
 

Little girl, mighty heart — bone condition doesn't stop her from earning black belt


Tri-City Herald - May 15, 2017
The daughter of George and Brandi Farrah was born with osteogenesis imperfecta, also known as brittle bone disease. She has Type 1, which is the mildest form. It means her bones are more prone to break, especially during times when she's growing.
 

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Osteogenesis Imperfecta: A Translational Approach to Brittle Bone Disease by Jay


 

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Osteogenesis Imperfecta books


Osteogenesis Imperfecta: A Translational Approach to Brittle Bone Disease


Osteogenesis Imperfecta is the first translational reference professionals can turn to for a source of comprehensive information on this disorder. Although several reviews of the field have been published in various journals, there is no other single source for a compendium of current information. Separate chapters discuss each of the several clinical features of OI. Ethical issues related to OI are discussed, as is the importance of nutrition in managing the OI child and the OI adult. The role of physical medicine and rehabilitation for OI patients is also presented, along with the current status of OI medical treatment and the prospects for genetic engineering in the future.
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Disable Your Disability: Live The Healthy Life You Deserve!


by: Tony Jacobsen
Disable Your Disability is a journey into self-discovery, a look into the gift of embracing circumstances that hold us back, and powerful concepts with sure-fire methods for taking action toward living the healthy life we deserve. If you live with a physical disability, limited mobility, or something else that is holding you back from living a healthy lifestyle, Tony's personal story, coupled with his clear and concise methodology, will help you gain insight and confidence, and get you clear on what it will take for you to achieve your health and fitness goals.
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Perfectly Imperfecta: Conner's Story: Living With Brittle Bones


by: Denise Goldhammer
Perfectly Imperfecta is the story of a boy who was born with a rare illness called Osteogenesis Imperfecta, more commonly known as Brittle Bone Disease. He can expect hundreds of fractures in his lifetime, but his spirit remains unbreakable. Despite a difficult path and many obstacles ahead, his family learns resilience, hope and faith.
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Scientist and Teacher, Anne Barrett Swanson


by: Mary Ellen Verheyden-Hilliard
This is the true story of a girl who never gave up. When Anne was born in Coal City, Illinois, the doctor told her parents she should be institutionalized because she had osteogenesis imperfecta, a disability that causes bones to break very easily. Her parents took her home and although Anne stopped growing physicaly at 3 feet 7 inches, she never stopped growing mentally. She became an award-winning concert pianist, earned a Ph.D. in biochemistry, married a medical engineer, and became the head of the science department at a mid-Western college.
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Osteogenesis Imperfecta videos

Osteogenesis Imperfecta Lecture


Basic Information on OI.
 

Osteogenesis Imperfecta Educational Film


 

What is Osteogenesis Imperfecta??


Osteogenesis Imperfecta.
 

Osteogenesis Imperfecta


Osteogenesis Imperfecta video for Honors Anatomy & Physiology Bibliography COL1A1 gene. (2003, April 1). Retrieved November 3, 2014, from ...
 

Osteogenesis Imperfecta: Explained


Osteogenesis imperfecta (OI), also known as brittle bone disease or Lobstein syndrome, is a congenital bone disorder characterized by brittle bones that are ...